Stevens–Johnson Syndrome
Basics
Description
- Stevens–Johnson syndrome (SJS) is a delayed, hypersensitivity reaction that affects the skin and mucous membranes, causing necrosis and detachment of the epidermal layers
- SJS is either drug induced, related to infection, or idiopathic
- SJS and toxic epidermal necrolysis (TEN) are considered a disease continuum and differ only in the amount of body surface involvement:
- SJS: <10% of body surface area (BSA)
- SJS–TEN overlap syndrome: 10–30% of BSA
- TEN: >30% of BSA, can affect up to 100% BSA
- SJS and TEN are different from erythema multiforme
- SJS characteristics:
- Blistering of <10% of the BSA
- 95% of patients have mucous membrane lesions:
- Usually at 2 or more sites
- Ocular, oral, genital
- 85% have conjunctival lesions
- Lesions often involving face, neck, and central trunk regions become confluent over hours to days
- Age of onset is any age, but most common in adults older than 40
- More common in women, female-to-male ratio of 2:1
- Incidence: 9.2/million for SJS, 1.6/million SJS/TEN overlap, and 1.9/million for TEN
Etiology
- The most common causes include medications and infections. Connective tissue disease, malignancy, and genetic predisposition are other known risk factors:
- The pathology of skin damage is not completely understood
- Damage to the skin is thought to be mediated by a cell-mediated cytotoxic immune reaction aimed at destruction of keratinocytes expressing (drug-related) antigens:
- Leads to massive apoptosis
- Medications cause the vast majority of SJS, usually in the 1st 8 wk of treatment
- Causative medications:
- Antibiotics (penicillin, sulfonamides, others)
- Anticonvulsants (phenytoin, phenobarbital, carbamazepine, lamotrigine, others)
- NSAIDs
- Antineoplastics (thalidomide, tamoxifen, others)
- HIV drugs (nevirapine)
- Allopurinol
- Infections:
- Mycoplasma pneumoniae is the 2nd most common cause of SJS
- Herpes simplex
- Viral infections
- HIV: Regardless of treatment status
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Citation
Schaider, Jeffrey J., et al., editors. "Stevens–Johnson Syndrome." 5-Minute Emergency Consult, 7th ed., Wolters Kluwer, 2027. Emergency Central, emergency.unboundmedicine.com/emergency/view/5-Minute_Emergency_Consult/307702/1.2/Stevens.
Stevens–Johnson Syndrome. In: Schaider JJJ, Barkin RMR, Hayden SRS, et al, eds. 5-Minute Emergency Consult. Wolters Kluwer; 2027. https://emergency.unboundmedicine.com/emergency/view/5-Minute_Emergency_Consult/307702/1.2/Stevens. Accessed June 22, 2026.
Stevens–Johnson Syndrome. (2027). In Schaider, J. J., Barkin, R. M., Hayden, S. R., Wolfe, R. E., Barkin, A. Z., Shayne, P., & Rosen, P. (Eds.), 5-Minute Emergency Consult (7th ed.). Wolters Kluwer. https://emergency.unboundmedicine.com/emergency/view/5-Minute_Emergency_Consult/307702/1.2/Stevens
Stevens–Johnson Syndrome [Internet]. In: Schaider JJJ, Barkin RMR, Hayden SRS, et al, eds. 5-Minute Emergency Consult. Wolters Kluwer; 2027. [cited 2026 June 22]. Available from: https://emergency.unboundmedicine.com/emergency/view/5-Minute_Emergency_Consult/307702/1.2/Stevens.
* Article titles in AMA citation format should be in sentence-case
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ED - Barkin,Adam Z,
ED - Shayne,Philip,
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ED - Schaider,Jeffrey J,
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ED - Hayden,Stephen R,
ED - Wolfe,Richard E,
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5-Minute Emergency Consult

